Patient Experiences Survey

2026 Data release

2026-05-15 Data on how 87 people recovered from Long COVID, post-vax, and ME/CFS
2026-05-15 Google Sheet containing recovery data

2024 Slides

2024-01-07 Version 2 (added link to survey questions)
2024-01-06 Version 1

2024 Video

Watch it on either Youtube or Odysee. 18 minutes.

Data dump

This forum thread has a tutorial on how to use the data dump to find more detailed information on specific treatments. This can be useful to know how many people have tried a treatment, the potential risk of a treatment, etc.

The survey

Click here for the survey.